HEALTHCARE

Parenting a Child with a Life-Threatening Condition

Parenting a Child with a Life-Threatening Condition

Parenting a child through all stages of life can be challenging and rewarding. In school, children are introdu... Read More

Health Disparities Revisited

Health Disparities Revisited

Health disparities affect underserved populations more than their peers, resulting in increased morbidity and... Read More

Six Tips ON Advocating for Your Child’s Special Needs When Specialists Say They Can’t Help

Six Tips ON Advocating for Your Child’s Special Needs When Specialists Say They Can’t Help

In January of 2017 my family and I discovered that our 15-year-old son Sebastian – a straight-A honor st... Read More

Telehealth and Individuals with Disabilities: Impacts and Strategies

Telehealth and Individuals with Disabilities: Impacts and Strategies

The past months of changes as a result of the coronavirus have affected the way business and services operate,... Read More

Genetic Counselors: Your Partners in Navigating the Exciting (and Sometimes Scary) World of Genetics

Genetic Counselors: Your Partners in Navigating the Exciting (and Sometimes Scary) World of Genetics

Genetic counselors work with families to answer the important questions: Is this test important? Will insuranc... Read More

What to Do When The Insurance Company Says No

What to Do When The Insurance Company Says No

Families may not know that they have options when a private health insurer or Medicaid denies a claim or reduc... Read More

Obstructive Sleep Apnea: An Underdiagnosed Chronic Disorder

Obstructive Sleep Apnea: An Underdiagnosed Chronic Disorder

ASleep is essential for normal growth and development in children and adults. Proper sleep is vital for our bo... Read More

Of Hospitals, Children with Disabilities and Everyone Else

Of Hospitals, Children with Disabilities and Everyone Else

For children with special health care needs, hospitals become a “second home” to receive the neces... Read More

The Top Ten Items to Consider When Creating a Personal Health Record for a Loved One

The Top Ten Items to Consider When Creating a Personal Health Record for a Loved One

Electronic personal health records and workbooks often marketed to family caregivers boast that they contain e... Read More

Beyond the Pill: What’s in your  Health Toolbox?

Beyond the Pill: What’s in your Health Toolbox?

Each of us has our own Health Toolbox which includes go-to tools that assist us with maintaining a healthy, fu... Read More

Rare Does Not Mean Alone

Rare Does Not Mean Alone

Parenting a child who has special needs can feel lonely and isolating at times. You and your family are on a j... Read More

Making Inclusive Health A Reality

Making Inclusive Health A Reality

Parker Thornton is 37 years old, plays golf, and is an avid writer living in New Hampshire. Today, Parker is a... Read More